Poems about Life Struggles

Life Is Precious

The gracefulness

of a butterfly,

how gentle,

and fragile they seem.

Gently fluttering,

on a calm summers day,

floating like,

a dream.

But sadly,

their time is over,

Hardly before it’s begun.

So enjoy

your special moments,

like a butterfly,

in the sun.

-Anonymous

The Roller Coaster Life

We are just in a whole crazy,

Perplexing roller coaster ride;

When we have problems,

We are at the downside.

But sure, the time will come

When with the sky we’ll collide;

Where the good feelings came

And the pain will all subside.

So when the time comes

 you are going to fall;

You should always know

That He’s the one to call.

Eventually, you’ll soar up;

The wheels will start to roll;

‘Till you reach the peak,

and You’ll be standing tall.

-Anonymous

Past, Present, Future

Our past we can’t recapture.

It’s over and it’s done.

No way to recover time;

All those days are gone.

No amount of coloring

painting with bright hue

can change the way things happened.

No way to make it true.

No use fretting over

Regretting bygone days

No need to get entangled

In memory’s purple haze.

Or caught up in unraveling

( or, of hoping we could do )

things that didn’t go the way

that we would want them to.

The future is uncertain

No way for us to see,

the things that tomorrow’s holding,

for you or for me!

NOW is what’s obtainable,

just moments here to share.

The future comes so quickly –

unseen but waiting there.

Seize the present moments.

Grab all we can contain!

Our future are elusive.

Our past we cannot chain!

-June Kellum

Christmas 2020

Merry Christmas to all!

Usually, we host Christmas every year. Although this year was a little bit different than others. With COVID and having to remain socially distanced (10 people or less per household), it’s difficult to do anything huge. We got together last night to open gifts and eat prime rib. We had the same people over as thanksgiving- my aunt, sister, her boyfriend, and my 2 nieces. One good thing about only hosting a small amount of people is that I don’t get as exhausted as I usually do around this time of year!

On another note, we did have a white Christmas. The day before Christmas eve we had a blizzard. It snowed all day into the night. It’s barely snowed all month, which is rare for December. I thought we were going to have another brown Christmas. The one bad thing is it’s harder for me to go outside in the snow. Hopefully, things will start to melt, and the plows will clear the streets within the next couple weeks.

I hope all of you had a wonderful holiday!

Jenni

Journal History II

In 2012, I created a new series on my blog based off journal entries from my CaringBridge website that I started after my accident. The first post shared entries from November 5-17th. I thought I would write another post continuing from the last. This one starts November 17th and ends with December 3. If you want to read the first blog post in this series called Journal History I, click here.

Sunday, November 17, 2002 at 09:36 AM (CST)

We would like to devote this journal entry to educate you about Jenni's injury and present physical condition. Jenni suffered a compression injury to her neck, specifically her spinal cord in her cervical vertibrae, (C1-C2), at the base of her neck. As a result of this injury, she does not have voluntary control of any muscles below this point, including her diaphram. She is on a ventilator to provide her breathing. Above the point of injury, she is completely functional with the exception of her voice. The ventilator tube enters her trachea below her vocal cords. 

Eventually she will learn to pass air across her vocal cords allowing her to speak with sound. At this time there is nothing surgically or medically available to repair spinal cord damage. None, partial or full regeneration of the nerve cells may happen, but only time will tell. You can learn more about her type of injury by visiting www.spinalcord.org. We hope to move Jenni from HCMC Peds ICU to Gillette Children's Hospital in St Paul for rehabilitation as soon as we get the ok. 

Tuesday, November 19, 2002 at 11:09 AM (CST)

We wanted to keep Sunday's journal as current for a couple of days to provide you with an overview of Jenni's injury and physical condition. We hope someday we will be able to make a point changes to that entry. If you have not seen the entry, click on past journal entries to read it. 

The Hospital Staff and Family are busy preparing Jenni for her transfer to Gillette Children's Hospital. It is still unknown when that will happen, but we are hoping for later this week. Today the OT's will get Jenni in a chair again. It is important her body learns to adjust to a more upright position. All in all she is in good spirits, herself looking forward to the move.

Again we thank everyone for all you have done. We cannot get through this without the tremendous support you have given. "Together". God Bless.

Wednesday, November 20, 2002 at 07:49 AM (CST)

Good morning. A couple of things happened with Jenni yesterday. She got to sit in a chair again..a full half hour! Today she is scheduled to sit again, only this time she may go "mobile" and get to see out a window. 

Jenni also received her long- awaited new trachea tube. This one is much smaller and much more comfortable for her. A speaking valve was temporarily installed, and she worked her vocal cords for about 15 minutes. It was nice to hear her sweet voice. 

Today is packing day for the family room. We are scheduled to move to Gillette on Thursday morning. 

Thursday, November 21, 2002 at 07:41 AM (CST)

Moving Day! This morning Jenni will be transferred from Hennipen County Medical Center to Gillette Children's Hospital in St Paul. Gillette is on the 4th floor of Regions Hospital. Today we will be busy learning more about the Hospital, the routines, parking, visitor hours, and meeting new people.

At this time we do not know the room Jenni will be in, a phone number, or when visiting hours are. Please allow us a couple of days to get settled before visiting. We will let you know the details of visitation, etc on Friday.

Thank you again for helping us through the last 3 weeks at HCMC ICU. We know we have a very long road ahead, but knowing you are all "Together" with us, we feel strong enough to make the journey.

Friday, November 22, 2002 at 08:31 PM (CST)

Today was the first full day at Gillette, filled with a lot of time gathering information, and adjusting to the new sounds, etc. Jenni is worn out. She seems to be adjusting well though. Last night she had a visit from friend Jeremy and his friend Ben. They came with their guitars and put on a little jam session for Jenni. When we recognized a song by Eric Clapton, the boys seemed excited that they were hitting the right cords. Great job guys! Jenni really enjoyed the time you spent with her. Hope you boys can make the stop again. (If the tour allows it.)

At this point there has not been any sign of improvement to Jenni's spinal cord, nor does she have any sensation below the point of injury. She still requires a ventilator to breathe. Regardless, we are filled with so much hope as we look for just one little sign of improvement, and we are so thankful to have our Jenni in our lives, and in yours.

Sunday, November 24, 2002 at 09:11 AM (CST)

Saturday was an active day early, then Jenni fell asleep for the afternoon. The HHS Girl's Basketball team stopped by after practice. Coach Cos and the team brought an autographed basketball from the Timberwolves. Thank you, Jenni will treasure it forever.

Later, we moved Jenni to a wheelchair. Tessa and Nina stopped by and gave Jenni a clock that has pictures of her friends at the hour marks. Really cool. After about 45 minutes in the chair, she started to fall asleep, so we moved her back to bed. She slept the rest of the afternoon.

Saturday night was the first night since the accident that no family stayed the night with Jenni. We are confident the Staff at Gillette took good care of her. 

Tuesday, November 26, 2002 at 06:36 PM (CST)

Jenni had a great night of sleep last night! She has not slept very good since moving to Gillette. Dad stopped by the Hospital at 7:30 am and stayed with her until Lori and Kristen got there around noon. She was so happy to see us. Jen spent 2 hours in the "chair". 

She had visits from Physical Therapy, Occupational Therapy, Speech Thereapy, Phychology, and Speech Pathoglogy. What a day in the chair! Jen got a new bed today, the old one had trouble rotating anyway. Pillows, lots of pillows, move our Jenni from side to side on the new bed. She's loving it. 

Wednesday, November 27, 2002 at 08:57 PM (CST)

Kristen writes tonight’s journal entry:

Jenni did not have very many visitors today, but wishes she had more because she was bored and there was nobody to talk to.(Except Nurses)

Jen spent about 1-1/2 hrs in her chair today and had a visit from her cousins Ben and Bridget on their way home to North Dakota. She got a visit from Bruce from the Casting Department and he made models of her legs for braces. The braces will help Jenni keep her ankles straight. She had a tough time deciding what pattern she wanted on them but she finally decided that she wanted Tweety on right leg and Taz on the left leg.

Things are going well and she was in good spirits today. We will update more on Thursday. God Bless.

Thursday, November 28, 2002 at 08:39 AM (CST)

Thanksgiving Day. Traditions. The Macy's Parade, Families gathering, dinner preparation, John Madden's 6-legged turkey, an afternoon nap, pumpkin pie, lefse, a late turkey sandwich, the wishbone. We have much to be thankful for. This year is a little different for us without Jenni home, but we have many new things to be thankful for.

Jenni is still a BIG part of our lives. Jenni still has her memories, her emotions, her Big Heart, and her sense of humor. Jenni is loved by a lot of people, family and friends, and she loves us right back. We are very thankful for this.

As you say your prayers today before your traditional Thanksgiving dinner, sneak a little "Jenni" in there. She would like that. Be thankful on this day for everything and everyone in your lives, and may God Bless you all. 

Friday, November 29, 2002 at 09:09 PM (CST)

Thanks for the Thanksgiving thoughts! Saw Jenni today, she was in a "bad mood", as she put it. She leaked she has been spoiled by nurse Tessa, who is off until Monday. She is still in good hands, but has found her favorite care givers.

This afternooon she transferred to her wheelchair. Neal, (Modifying Man), completed his work. He changed the chair so Jenni is completely mobile; ventilator, food, monitors, and suction. (Sorry, had to leave the two EMINEM posters behind-darn). 

Jenni took a trip to the shower room with her mom Lori to get her hair washed. They could use a hand -held sprayer in there.

Sunday, December 01, 2002 at 11:45 AM (CST)

We didn't forget about Saturday, it was just a busy day all around. Jenni had a lot of visitors throughout the day and they kept her active. Later in the evening she took a trip to the whirlpool bath. This was her first "full" bath.

This morning the RT removed some air from Jen's trachea tube allowing her to speak without the valve. She is doing a wonderful job of adjusting. Now she can speak at will, anytime. Soon they will remove all the air allowing air to pass over her vocal cords all of the time. 

All in all Jenni is in good spirits. Visitors really help, so keep coming when you can. God Bless.

Monday, December 02, 2002 at 07:39 PM (CST)

Jenni has made some very big strides the last couple of days. The Staff has removed almost all of the air,(actually water in this style), from her trachea insert. Picture a small tube inserted into a larger tube. In this case the small tube is the trachea insert, the large tube is Jenni's actual trachea tube. Around the small tube is a cuff, or balloon containing water. Inflated this cuff seals the trachea tube allowing air to enter and leave only through the small tube. Deflated, it allows air to enter the small tube, but exit past her vocal cords.

Jenni has found the joy of talking again-anytime she wants! She's loving it and so are we. She is surely actually talked on the phone Sunday. She called her Grandpa and Grandma Jim and Jean in Arizona, her Mom, her sister Kristen and Aunt Sandy. (We see speed dial and a headset in the near future.) 

Stop by and talk to Jenni sometime, she can't wait to show and tell you what she can do! She is so amazing.

Tuesday, December 03, 2002 at 09:59 PM (CST)

Wow! What a difference a day makes. Yesterday we explained how some water was removed from the cuff in Jenni's trachea insert allowing her to talk...freely...anytime she wanted...and she did...all day...til she was hoarse. Today they removed all of the water from the cuff. She talked, and ate applesauce, and talked more, and drank 7up, then talked about mashed potatoes and how good they would taste, then got mashed potatoes from the cafeteria and ate them, then talked about how good they tasted. What a difference a day made.

It is so inspiring to witness this amazing young lady work with this condensed version of the larger life she had been used to prior to the accident. Jenni is truly one of God's finer children and may the whole world get to know her some day...she would make a difference.

Things I've Been Doing

I’ve had a few appointments in the last month. Most have been through video or phone calls with doctors. Nothing in particular; just a follow-up or annual visits. I’ve had other appointments for new nighttime AFOs and adjusting my back brace and daytime AFOs. It’s good to get new and/or improved equipment, but sometimes can be a pain working up towards it, especially in the winter.

Thankfully, we haven’t had much snow yet. There isn’t even any on the ground right now. It’s a good thing too, as it can be rough getting outside. Recently, the temperatures have mostly stayed above freezing. I have still been trying to get outside as much as possible. Not only does it feel good to get fresh air, but Brody loves his walks!

I can’t believe it’s almost Christmas! We decorated a couple weeks ago and put a real tree upstairs and a small fake one downstairs. This year was a little different shopping wise because of COVID. Things were on sale all of November instead of just Black Friday and Cyber Monday. I ended up doing all my Christmas shopping and wrapping early. To me, it always feels good to give than receive.

Both of my Bible study groups are taking breaks until next year, which is only a few weeks away. I’ve been reading, playing games, watching movies, and talking to friends. I’m also enjoying having another niece. She’s getting so big already; even though she’s only 6 1/2 weeks old. 

Jenni

New Life and Holiday

On October 26, 2020, my sister gave birth to another healthy baby girl. She was 11 days early, 8 lbs. 8 oz., and her name is Madilyn. Her big sister Avery, now 7 years old loves to hold and play with her. I’m an excited auntie who is now proud to have 2 nieces to spoil. I have shared some pictures below.

Me holding Madilyn. I have the same picture of when Avery was a baby.

Big sister Avery holding Madilyn. My dog Brody loves babies and had to be in the photo!

Madilyn smiling; she is now one month old!

This year is going to be a little different with Thanksgiving. With COVID 19 going around, the governor of Minnesota shut down all restaurant and bars, along with limiting gatherings of 10 people or less. We usually host Thanksgiving and there’s usually at least 20 family members. Although we’re just going have my sister, her boyfriend, my nieces, my aunt Sandy, my mom and me for dinner.

It’s a little different with such a small amount of people, especially since we usually serve such a big meal on Thanksgiving. Although I’m thankful to have family around, supporting and helping me when needed. I know not everybody this year has that, especially since the pandemic.

I’ve been busy with both of the Bible study groups that I’m in. Like I stated a couple posts ago, since I started both groups, I sort of put aside my blog posts. For one of my groups we read certain verses and answer questions that go along with it. It’s thought-provoking and engaging, but between the 2, it’s a lot of reading.

Jenni

Celebrating Life with a SCI

When a person has a spinal cord injury, they may experience a mix of emotions. It’s also one of the most traumatic things they will ever face. Due to it, people may experience physical or emotional side effects. However, life after a spinal cord injury can be managed.

Some days, my mind might wander off and I feel down. In those cases, I try to keep my mind occupied and engaged by doing other activities. These include things like painting, writing, watching movies or reading. I'm usually able to keep myself composed and engaged in the present moment.

Today marks the 18th year anniversary of my accident. Since then, it has forever altered the way I go about doing things. It may be a change, but it doesn’t define who I am. I refuse to let my injury beat me. It’s important to me to have a good perspective on life. I like to be positive and optimistic about things. That means choosing to celebrate even the smallest victories.

Aside from some of the “hard times”, I know that life with a spinal cord injury is worth living. Whether someone is injured or not, life can be difficult. That is why I like to share my story with others. I believe there is a point to every single moment. I try to experience as many things as I can in the time that I am here because life is short. 

Jenni

Update on Me

The past few weeks have gone by fast. Back in July, I talked about how I joined a Bible study group that meets once a week. Since starting, I have really enjoyed reading the Bible. Every story has a meaning, and it can be applied to life in different ways. I decided to join another group that also meets once a week but on another day.

This one is different in which instead of reading the Bible in a year, we are just studying the book of Genesis and it only goes until December. It is also more involved. There are lectures to watch, notes to read, and questions to answer along with the reading. I like both group studies, as they keep me busy. Probably the reason why I haven’t written a blog post for a while.

I have still been trying to get out every day, walking Brody. It’s been really nice outside, with temperatures in the 60s and 70s. It even got to 80° the other day. I’ve been enjoying the fresh air and change of scenery from my house. All the trees are starting to turn orange and red now that it’s fall. Pretty soon winter will be here and with all the snow it’s hard to go out. Not to mention when the temperatures drop below freezing.

Fall Colors in Minnesota

Brody and I on a Walk and Roll

Since quarantine started in March, I have only left my house a hand full of times. Because I am on a ventilator, I’m at such a high risk if I get the coronavirus. That’s why I’m so cautious about being around other people and going to places that may be overcrowded. I suppose I could go to a park or movie where I could social distance myself from others. I do have a couple of doctor’s appointments coming up in October and November so I will be going out, but it’s nothing like doing something for fun.

I have still been in a lot of neck pain. When visiting my neurosurgeon last month, I got an x-ray of my neck to see if everything looks okay. He also wanted to see if there was anything bone related that could be causing my pain. But when he looked at it, he didn’t find anything. In fact, he stated that the plate that he put in when I had surgery to remove a bone spur in my neck was holding stronger than he initially thought it would. I would’ve had to have another surgery to do a bigger fusion if it wasn’t. He said that my pain was probably just due to strain leading to tight muscles, especially because I can only move from my neck up.

Also, I’ve still been having trouble sleeping and with edema. My sleep doctor doesn’t want to give me anymore medications for sleep because I’m already taking a lot. I did get a prescription from my primary doctor for anxiety, which has helped a little bit with sleep. That’s one thing that keeps me up at night. He also referred me to a specialist within the University of Minnesota Fairview offices that can take another look at why I might be retaining fluids. I had a phone call with a doctor and he’s going to look over every test I’ve done and every medication that I am on to see if he can figure it out.

Other things that have been keeping me busy are playing games, watching movies, and painting. Yesterday I painted an abstract picture with lots of colors on it in which I posted below. I also shared a few pictures of Brody. He is quite the favorite around the house!

Avery and Brody

Brody on My Bed

Brody Sleeping on his Toy

Abstract Rainbow Painting

Jenni

Change in Life

Change can come in many forms in our lifetime. It might come fast like a tidal wave or come creeping in slowly like a glacier. It might come in the form of an overwhelming tragedy, tough choices, shattered relationships, or even new chances you are faced with. Many times, change can be for the better even though it may be difficult. 

One thing to realize is that change takes time to get used to, whether in life or business. Also, by merely changing your attitude, and not focusing on the past or present, you can change the future. Whatever type of change you might be going through or up against, just know that you will learn to cope, and you have an opportunity to become something unimaginable.

Jenni

“The secret of change is to focus all of your energy, not on fighting for the old, but on building the new.”

-Socrates

"Some periods of our growth are so confusing that we don't even recognize that growth is happening...Those long periods when something inside ourselves seems to be waiting, holding its breath, unsure about what the next step should be, eventually become the periods we wait for, for it is in those periods that we realize that we are being prepared for the next phase of our life and that, in all probability, a new level of the personality is about to be revealed."

-Alice Walker

Help, I Need Somebody!

This morning both my day nurse who works 7 AM-7 PM and my PCA who works 7 AM-12 PM called in. I’m not sure why, the companies don’t tell the reason for it. Luckily, my PCA company was able to get someone to work the shift. Also, the PCA that works at night from 6 PM-10 PM came in at 2 PM-10 PM. Unfortunately, the nursing agency ended up not finding anyone to fill the shift, so my mom worked it.

It’s very difficult on everyone when one or more of my caregivers can’t work. Especially when there is nobody to replace them. It is usually up to my family to help me, do my cares, and make sure nothing goes wrong. Since I need to require 24/7 nursing, especially in case something went wrong with my ventilator or tubing, it’s very important that someone is always within earshot. My ventilator will alarm if the tubes pop off and I can’t breathe because of it.

A good example of this was just the other day when I was out for a walk with Brody, my nurse and a nurse in training. Something within my circuit came apart and she could not find it right away, so she had to use my Ambu bag on me. In case you don’t know what that is, it’s something they hook up right to my trach and squeeze air in inflating my lungs so I can breathe (also known as a “self-inflating bag”). It was also helpful that I had an extra set of hands along to assist.

Hopefully, everything gets back to normal. It can be stressful when people call in for their shifts, especially nurses. At this point in time, I don’t have a lot of people to call for backup who are trained specifically for my case. Although sometimes anybody is better than nobody to help out.

Jenni

Wheelchair, Standing and Health

The other day the company that helps me with my wheelchair, took it for the morning and worked on it. They replaced my tires and put in a better backrest. Also, they adjusted the seating of it, so it fits me better. They even switched out the display screen that I look at to a more “high-tech”, colorful ne space.

The only problem was that since I don’t have a back-up wheelchair, I was forced to stay in bed until they brought it back to me. It was a good thing that it didn’t take too long to fix it. They picked it up at 8 AM and brought it back to me by 12:30 PM. Even though I wake up around 7 AM, I normally get out of bed by 10 AM every day, so it wasn’t that much longer. I just had to eat lunch while lying in bed, since I usually eat around 11 AM.

As far as standing, I still haven’t been able to do it yet. Although my right tibia is no longer fractured, my left kneecap still slips out of socket. I have a physical therapist comes twice a week. One of those days (so once a week) she puts Kinesio tape on it to help hold it in place. It seems to work well, as long as the tape sticks well. I don’t get it wet when I shower, so that helps.

Hopefully, I can get back at it soon. I think it will help me lose some of the water weight that I’ve gained. My doctors still can’t find a reason why I am having so much edema. I’ve had a few different doctors order labs and done multiple tests. Even though there been many theories thrown out there, none of them seem to be the answer based off results. I have faith that someday I’ll figure out what it is.

Jenni

August Storms

This month there have been a lot of storms. There was one that was so powerful that the thunder shook the house. A couple of them were so strong that they knocked trees down. We also had a day where tornado warnings flashed across the whole state, and even a sighting of one. I posted some pictures below of some of the damages from the storms.

Across the street from my house.

Down the street from my house.

Radar from the news when the tornadoes were brewing.

Jenni

Going Out

Yesterday I went out and got some labs drawn. My mom took me to the clinic, which is right down the street from my house. Usually, when they take blood, the easiest place for them to stick me is in my hands because my veins tend to roll. It took them three tries before they were successful because my veins are so tiny. Apparently, they have a 2-stick rule; when the first lab tech didn’t get it on the second try, she had to call someone else over to do it. It’s a good thing the second tech got it on the first try because there were only two people there drawing blood!

I have a video appointment on Friday with my primary doctor to discuss medications and my labs. He ordered a bunch of different things but was specifically looking at my albumin and sodium levels. I also have a video appointment in September with my neurologist and one of the vials of blood was for the levels of seizure med that I take.

Today I was able to go out and get my hair cut. I go to the JCPenney salon in the mall, also a couple blocks from my house. It’s been well over a year and half since the last time I got it cut. I figured it was about time since it was down to my elbows when sitting in my wheelchair. I always have the same girl cut it because she knows what I like and, also how to do it in my wheelchair. In order to get it even, I put a pillow behind my back to prop me forward. I got almost 5 inches cut off and it is still on my arms. 

In both places I had to wear a mask. I just poked a hole in it for the straw on my wheelchair so I could drive. Wearing it made me realize now what my caregivers go through when they constantly wear one. I suppose overtime you get used to it, but for me it was hard to see where I was going as I was driving my chair.

Jenni

Life Lived

Do you ever have “those” days where something goes wrong, and it throws you off balance? Or you had an exciting thing happen and now that it’s over you feel lost? Sometimes this can make you sad and often let down on life. It can also have a dramatic effect on one’s mood and self-esteem. The awful news that is around these days doesn’t help.

Throughout my life, I’ve experienced plenty of situations where this has happened to me. I believe it’s important to minimize your exposure to the unwanted and open your eyes to the world that surrounds us. Look at the details of your everyday life experiences. It is within yourself to choose the path that you want to go down, and what type of life you want to live despite circumstances that arise.

In order to help the quality of your life, you must remind yourself that it’s precious. This can also lead to fighting for things you believe in and making changes in the world. Be connected, brave, courageous but also be present as you take on new challenges.

Jenni

Thoughts and Sleep

Thoughts can affect our moods, behavior, and even take on a life of their own because they have distinct characteristics. Depending on how strong a thought is, the more likely it affects our day and can repeat itself multiple times. In order to ensure a healthy mindset, we should always have the right types of thoughts. This is one reason why I like positive quotes and affirmations so much.

Sometimes I have trouble sleeping. I’m on a couple of different sleep medications in order to help, although they don’t always work. When I’m awake at night, I am usually consumed with several thoughts that are mostly just random and unneeded at that time. They can often become my own worst enemy.

Since I have nurses 24/7, they help me with my every need. This includes doing things during the night, even when I’m sleeping. The constant interruption makes it even more difficult to have a restful night. Not to mention the difficulty revolving around lack of independence.

Also, I tend to get anxious from time to time. Although I know it’s normal, when anxiety routinely gets in the way it can also ruin sleep. Lately, I’ve been having some neck and shoulder pain. I have an x-ray scheduled and then an appointment set up with my doctor to get it checked out. It often hurts and tenses up in the middle of the night which doesn’t help.

When I can’t sleep, I usually put on some relaxation music and try to calm my mind down. I also put something over my eyes to shut out any light and it does help with disruption. I know a good night’s sleep is a key factor in maintaining people’s health, which is why it’s so important that I get it when I can.

Jenni

Creating More Paintings

Recently I got back into painting; it has been a while since I’ve done it. I figured that since I haven’t been able to get out places that it would be something nice to focus on doing. For me, painting is very relaxing and enjoyable. It allows me to take my mind off anything stressful and focus on my creative side.

Depending on what I’m painting, depends on how long it takes me to finish one. Sometimes I can complete one in a single session. Other times I end up working on a specific piece for multiple days. I posted some pictures below of a couple different types that I’ve done over the past few weeks.

Abstract painting

Landscape I

                             

Landscape II

Landscape III

My favorite artist’s name is Kelly Ray Roberts. She does mixed-media art, and I have seven of her pictures hanging on my walls and a few on my desk. I just love how creative she is and how inspirational most of her artwork is. It’s definitely right up my alley.

Jenni

Nurse Call Out

I have stated in the past how much I depend on my nurses and PCAs to help with all my cares. They are important and vital in order to go about my daily life. Even though sometimes it can be difficult to have people around me 24/7, I’m fortunate to be fully staffed. 

When either a nurse or PCA calls in or we do not have one for that shift I have to rely on family to help. Sometimes we are able to get someone to fill the shift, either one that works here, one that’s backup, or someone new to just fill in. Although it doesn’t happen very often that we find a replacement, especially if the call out is that day.

It’s always difficult when this happens for a couple reasons. First, my mom isn’t able to do any lifting like she used to be able to. Although my aunt, Sandy, can help when she’s here which is nice. Second, I don’t always get everything done that I need or want in a given day. I know everyone does the best with what they can do, and I am very appreciative of that. 

This morning, my day nurse called in saying that she had a “family emergency”. I never know if it’s true or not or what the real reason behind it is. Luck was on my side that Sandy was available to help. Also, my PCA that worked this morning from 7 AM to 12 PM said she could come back and work from 1 PM to 3:30 PM to stay with me. They don’t do nurse related stuff but are here if I need anything else.

Jenni

Effect of Coronavirus

Throughout this year, COVID 19 had a dramatic impact on the way we spent our time. People ended up watching more TV with apps like Netflix, using their phones to make face calls with others, and shopping online. Since the lockdown was enforced, our society changed, and this especially includes the use of our devices.

Big increases in the use of social media, entertainment and communication apps showed that our devices were vital in helping to replace the human connection and social gatherings during our time indoors. Even when things started to open, the popularity continued because doing things remotely is so much easier. Also, the coronavirus cases continue to rise, so it is causing people to resort to what is available at hand.

For many Americans right now, the scale of the crisis has also reshaped the way we go about doing other things. This includes how we buy homes, travel, to the level of security and surveillance we are accustomed to, and even the language in which we use. No one knows exactly what will come or when this is going to end, which makes these new and different ways even more obvious.

Another sign that it’s reshaping us is the level in which we go about our daily lives. This includes being with other people, touching things, and even breathing the air in an enclosed area. Even when this is all over, it could become second nature to recoil from touching our faces, washing hands more frequently and shaking hands with others. Unfortunately, it also resorts back to online usage, as more people will be asking themselves whether it’s important enough to do things in person.

Jenni

Starting My Book

After ending my CaringBridge website, I started my blog in 2008. I thought it would be a good way to develop my writing skills and put all my thoughts together. Upon starting it, I didn’t know how big it would become and how much of an impact I was making on others with my posts. After doing it for a while, I realized that with my passion for writing that I wanted to write a memoir regarding my accident and the years following.

Although with my blog underway, my daily routine and other tasks in life holding me back, I put the book idea on standby. Except lately more ideas have been popping into my head regarding it. That’s when I decided it’s time to start the process of gathering some information together. I’ve been researching information on “how to write a memoir” and began working on putting an outline together. 

I’ve saved just about every blog post I have written in Microsoft document form. I’ll probably use bits and pieces of them within it. Then it’s a matter of actually writing it, publishing it myself and then getting it out there for all to read. I know it’s going to take me quite a while to get it finished, but starting it is always the hardest part!

Jenni

Being Special

I think what makes anybody special is being authentically you because there is only one of us in all of time. We each are special and we each are unique, all brilliant things. Just allow yourself to be that person. Allow yourself to make mistakes. Allow yourself to try things. I think that’s what makes you special.

I would never alter the way I am to change the way others see me. If they don’t like me, I can’t do anything about it because I am who I am. I’m a positive person, one who recognizes that just because someone may be different, doesn’t mean it’s a bad thing. I only have good intentions, no matter what the situation is.

My main goal is to help others and show them the endless possibilities available. That is why I enjoy public/motivational speaking. To share my life story, educate people, and show the abilities of people with disabilities. By speaking, I teach others not to take things for granted, never give up, and live life to its fullest. You never know what can happen.

Jenni

“The more you like yourself, the less you are like anyone else, which makes you unique.” - Walt Disney

Bible Study

Recently I joined a Bible study group consisting of three other people, one of which is a longtime friend of mine since second grade. We meet once a week (Thursday nights) via FaceTime and talk about certain sections of the Bible. We go based off another book that helps break down the Bible for you to read it in a year. I’m really loving getting back into reading and learning more about the Bible. 

I’ve always had faith and been a Christian, but never really went to church much. Only when I was in junior high with my friend. A couple years after my accident my family and I started going to a church about 15 minutes away from my house. Although we stopped going a few years back, in 2016 when I was hospitalized a lot. And now with the coronavirus, I’ve been finding it difficult to go out to places. Every so often, I watch the service online.

It gives me a great feeling when I am reading the Bible, talking about it, and praying. I know how lucky I am to be alive today despite my accident and often tell myself that it was a miracle that I survived. To me, having faith isn’t always about believing in God. It’s an expression of hope that goes beyond the conscious mind and based in one’s heart.

Jenni

“Without faith in ourselves we would hold ourselves cheap, and without a faith in others we could never live as free people.” - Arthur Dobrin

Butterflies and Birds

A few weeks ago, my friend brought me three monarch caterpillars. I got to watch the process of them going from caterpillars into butterflies. This is the fourth year in a row that I had the privilege to do so. They all spun on the same day and came out on the same day (15 days). After they come out of their crysalis, their wings stay wet for a couple hours. That’s when I was able to put one on my hand upon release!

Also, on the topic of nature, there is a robin’s nest on the side of my house. The mom leaves almost every time I go past it. I was able to see them when they were eggs and then right after they all hatched (through pictures). It will be fun to watch them as they get bigger and eventually fly away.

Jenni

Update on My Wheelchair

A couple hours after I posted the blog post about my wheelchair, I figured out a way to get outside. I realized that we have power outlets outside around my house. So, I just unplugged my vent from inside and plugged it in outside. It was kind of funny though because Brody would come out with me thinking we were going for a walk. Although he got very confused when I didn’t have his leash and we never left my backyard! 

Also, my vent has an internal battery of about an hour. I ended up going on short rolls with Brody. However, I didn’t feel comfortable going for more than 20-30 minutes. I didn’t want to risk losing power away from my house and a power source.

The following Monday after they said the external box was short-circuited, I called to check-in on the order. They decided to send someone else out to see if they could figure out if there was one other thing they could do before ordering one. Although he checked everything and confirmed that because there was no power going from my wheelchair to the external box, that I would need a new one.

It didn’t end up coming in until Thursday, July 2. That’s when a third guy came to replace it. After doing so, he realized that there still wasn’t power going to the new external battery box. He called someone from the company and together they figured out that it wasn’t the box at all. The problem was that when he changed the two wheelchair batteries, he didn’t hook it up right.

Each battery is 13 volts, and my ventilator needs at least 24 volts of battery to run. When he went to hook the box back into the wheelchair battery, he only hooked it up to one battery and not both. Therefore, it wasn’t getting enough charge. It was such an easy fix for so much hassle! I should have remembered this because the same thing happened last year. Although it didn’t take as long to figure it out.

Well, I’m back up and running now. Lately I’ve just been getting outside every day, although the temperatures have been above 90°F. It doesn’t bother me though. One day when I got inside, I took my temperature and it was 96.5°F even with wearing a long-sleeved sweatshirt. I’m hoping to start getting away from my neighborhood and out to some stores now that they are open.

Jenni

Burnout: SCI Related

A while back the World Health Organization added burnout to its list of diseases. The definition of job burnout, according to them relates to stress caused by a person’s job or workplace. The symptoms of burnout include feelings of mental, physical and emotional exhaustion caused by excessive and prolonged stress. It occurs when those feel overwhelmed, empty, unable to meet constant demands, and emotionally drained. When job-related, people often find it difficult to get their work done.

Typically, a full-time job consists of at least a 30-hour workweek. Coincidentally, it’s also the amount of time, if not less than, I spend dealing with things that I wouldn’t have to if I didn’t have a spinal cord injury. Over the years, these 30-hour weeks add up and can take a mental and physical toll on an individual. There is a big difference between a standard workweek and a “spinal cord injury workweek”. It’s that there’s no escape from the daily tasks of living with an injury.

The spasms, pain, accessibility issues, caregivers, battles with insurance and everything else that comes with having a spinal cord injury never really go away. Most people can take a vacation from their job to escape any build-up of emotions or stress. Although those of us with SCI’s often dread traveling because of the added stress caused by it. Burnout is often inevitable when living with a spinal cord injury, making it especially hard to take a break from current situations. 

It’s important to find ways to manage the stress and have a variety of relief tools since there is no vacation from the injury. Some people have an ability to bear down and push forward through the difficulties involved. Although that doesn’t always work for everyone and may only help for a short period of time. 

Those with spinal cord injuries deal with unique but similar situations that only us in the community can understand. Being a C-1 C-2 quad paralyzed from the neck down and on a ventilator for almost 18 years now takes its toll on me. I’m always trying to find ways to keep moving forward despite my situation. That is why one way to vent frustrations is to talk to someone who understands the same thing one’s going through. 

Another thing that is important when dealing with stress is to take care of oneself physically. Often our bodies tend to take a toll on what goes on. It can cause situations such as struggling to cope, depression, high blood pressure, weight gain, and even ulcers. All these can add up, complicating the problems that come with spinal cord injuries.

 

Some short-term stress relievers include exercise, doing yoga, meditating, guided imagery, muscle relaxation, listening to music and going outside. Long-term stress relievers can include aromatherapy, getting a hug, doing artwork, eating healthy, and doing leisure activities. Also, develop a positive self-talk habit. The way one talks to themselves matters.

Jenni

“Once you choose hope, anything is possible.” -Christopher Reeve

My Wheelchair Fiasco

The other day my wheelchair batteries stopped holding a charge. Even though it was being charged all night, it would run down very quickly during the day. Yesterday, someone from the wheelchair company came out to replace the batteries. After doing so, my wheelchair was working better, and the batteries were holding charge which was nice.

About an hour after he left, my ventilator started beeping battery low. We realized that it had not been charging properly. Usually my vent plugs into my wheelchair battery and charges off that when I’m using it. We thought that when he put the new batteries in, he forgot to hook the cord from my vent into it.

I ended up calling the company and they sent the same person back out to see if he could fix the problem. Upon inspecting it, he realized that all the cords were connected properly. Looking at it further, he found that the lights were not lit up on battery box that connects from my wheelchair and then into my vent. This was concerning, being that the internal battery on my ventilator only lasts about 45 minutes to an hour until it runs out. That’s why I have plugged into my chair; it needs to be plugged in to an external outlet.

Since yesterday was a Friday and about 5:30 PM when he was back out, he said that he wouldn’t be able to order a new one until Monday. He’s going to check to see if they have any rental power boxes that I could use in the meantime. Otherwise, I’m stuck indoors for now until they’re able to get me a new one. I don’t want to risk going outside with only an hours-worth of battery.

Hopefully, I’ll be able to go out soon because it’s difficult for me to spend so much time inside. I’ve already had to self-quarantine this year because of COVID 19. To be isolated and unable to have control over what I do takes a toll on me physically and emotionally. It’s hard because I depend on others for so many things already. I will do a follow-up post after everything gets resolved; hopefully sooner than later.

Jenni

Guest Blog Post by Brody II

I’m back to share more. Lately, I’ve been enjoying the nice weather outside when my mom takes me for a walk. I like to pull on the leash to make her wheels go faster. I rely on her to give me affection, protection and everything else. I like to look in her eyes and am hopelessly devoted to her. She is my family.

I’m a dog, I’m fun, all I want to do is have fun. When she is sad or crying, she really messes with my mojo. That’s when I like to jump all over her, lay on her lap and comfort her until she gets over it and takes me outside. I love the simple pleasures of life for the most part and don’t really care what she does as long as I can be with her.

One thing about me is I don’t judge. If she makes a mistake, I forgive her. If she forgets something, it’s no big deal. If she ever has doubts, I will politely disagree. I see her for what she really is, pure awesome!

I know how to make her feel guilty. I just sit in front of her or at the window and she knows what I want; either some attention, to play, or go for a walk. Also, I know how to speak English, just not verbally. Sometimes I choose to ignore her if I have no interest in what she’s saying. 

My favorite thing to do right now is sleep. I’m most comfortable tucked in tight places. I also like to sleep in my bed, on the couch or floor with something covering my face. The more hidden I am the better. Here are some pictures:

        

Brody

Botox Appointment

Yesterday I went to Gillette and got Botox in my neck along with the top of my shoulders. I had to get transportation to take me all the way to St. Paul which is about 30 minutes away because the Gillette in Minnetonka (10 minutes away) closed. When I called last week to schedule the ride, they told me that they’re having all passengers wear masks. I also was told that I needed to wear one going to the clinic as well.

I hadn’t been out of the house, other than my daily walk and rolls with Brody, since the use of masks were required. I was fine with it and didn’t think much of it until about 10 minutes before I was to leave. My nurse got one of my cloth masks that I had and I was about to put it on when it suddenly dawned on me. How was I going to wear it and drive my wheelchair at the same time using my sip and puff straw?

After a minute of questioning myself I had to do some quick thinking. Luckily I had some paper masks in the house. My nurse cut a tiny hole in the middle of the mask just big enough for the straw to fit in so I could still drive my chair. One problem was it restricted my vision a little bit, so it was harder for me to figure out navigation wise where my wheels were. Also, I didn’t realize how hot the masks are. It’s a good thing I only breathe out my mouth and not in as well.

The appointment itself went well. I don’t feel instant relief; it takes a few days for it to kick in. I scheduled my next Botox appointment for this October.

Jenni

Quotes

Little drops of water, little grains of sand,

Make the mighty ocean, and the pleasantly land.

So the little minutes, humble though they be,

Make the mighty ages of eternity.

Little deeds of kindness, little words of love,

Help to make earth happy, like Heaven up above.

-Julia Carney

“ When you get in a tight place and everything goes against you,

till it seems as though you could not hold a minute longer,

never give up then, for that is just the time and place

that the tide will turn."

-Harriet Beecher Stowe

One step and then another,

and the longest walk is ended.

One stitch and then another,

and the longest rent is mended.

One brick upon another,

and the tallest wall is made.

One flake and then another,

and the deepest snow was laid.

        -Anonymous

Overcoming Obstacles

When faced with obstacles, do you give up too quickly? How do you react when something suddenly stops you in your tracks? Many of us set goals and dreams for ourselves. What happens when you don’t reach them? Your view of how you see obstacles makes a difference and affects how you react to things.

At some point in life, each one of us will face hard times. Sometimes the hardships last longer than anticipated, and other times they come for a short while. We all have strengths that allow us to move forward even though those moments feel like they are going to break us. Look at the hard times as an opportunity to grow, learn and improve your situation. Having courage, mindset to persevere, and determination can make all the difference.

When we are in the middle of a tough situation, we should pause for a moment and remember that this too shall pass. That exact moment can merely be a stepping stone to where we are going. Each one of us has a different method of coping and dealing with challenges that come about. It is difficult, but it is a vital part of learning about oneself.

Even though we wish we could do without the struggles in life, they help develop our character. Overcoming each one is another opportunity that shows us we can make it through anything. It helps by teaching us lessons we would not learn otherwise and when things don’t go as planned. It’s important to be inspired and find courage to keep fighting whatever your facing at this time. Identify what you can change and focus on what you can gain. Try to embrace the future and put the past behind you.

Jenni

Here is a poem about overcoming hardships to help inspire you:

You Will Never See Me Fall

You may see me struggle,

but you won't see me fall.

Regardless if I'm weak or not,

I'm going to stand tall.

Everyone says life is easy,

but truly living it is not.

Times get hard,

people struggle

and constantly get put on the spot.

I'm going to wear the biggest smile,

even though I want to cry.

I'm going to fight to live,

even though I'm destined to die.

And even though it's hard

and I may struggle through it all,

you may see me struggle...

but you will NEVER see me fall.

-Joyce Alcantara

Fear of the Unknown

It is fair to say that as of now, our world has been changed forever. The year 2020 will be a memorable one, and we are only halfway through. Many people are fearing what the future may hold while others have fears about their situations in the present. Life as we know it will be different.

There are many different types of fears. One that sticks out right now is Xenophobia, fear of the unknown. It can be hard to describe because all the feelings and thoughts about this fear are in people’s heads. The phobia is when people have irrational beliefs and thoughts about people and situations that they perceive to be foreign or strange. Essentially it is the fear of anything that is beyond their comfort zone.

Some people who are Xenophobic tend to have a fear or hatred towards foreigners, people from different cultures or strangers. They also dislike people who are different from them and their behavior can become extremely violent. There are recent examples in the media today with the COVID 19 pandemic. People have taken strong violent actions and racism towards Asians and people of Asian dissent. It’s also being shown with all of the violence following George Floyd’s death.

Decisions made based from this fear will not be one that moves people forward in life. The fear of the unknown is based on the perception of what might happen in the future. An underlying cause is people’s fear of failure. This is especially true when they are about to embark on a new journey that will take them out of their comfort zone.

In order to conquer the fear of the unknown, one has to commit to making changes within themselves and that is where it gets tough. Just like any fear, it’s not something that can just be ignored and go away. Ways to do so may be shifting consciousness, letting go of negativity, learn to accept failure and finding clarity. Also, although it may hold people back from being who they could be, hope can give a person comfort and courage for the future.

Jenni

“I learned that courage was not the absence of fear, but the triumph over it. The brave man is not he who does not feel afraid, but he who conquers that fear.” Nelson Mandela

Hilarious Videos

Sarah Cooper is a comedian and author who describes herself as “not the normal demographic for TikTok”. Although when Trump handed her what she explained to be “liquid gold”, she decided to use it. She lip-syncs his worst comments from press conferences and creates the most hilarious videos that have now gone viral. She has now caught the attention of many people including the news and even Ellen DeGeneres. Here is her first original video created on TikTok and uploaded to YouTube:

Lifting Orders

Despite the number of coronavirus cases rising, Minnesota’s stay-at-home order expired on May 18. Although it extended many restrictions on public gatherings including eating at restaurants and in-service religious services until June 1. That means most retail businesses are open at either 25% or 50% capacity under safety guidelines. Small social gatherings are permitted with 10 or fewer people. These orders have varied from state to state, with some opening their doors earlier.

I’m hoping to go out somewhere soon. The only thing is the more I start venturing out, the more risk I have of becoming exposed. Even though I could figure out a way to maintain distance, I mostly would be worried about other people coming close to me. That’s why starting with somewhere like the mall would be good because it’s more open than a regular store. Next month I have some doctor appointments scheduled, but that’s another month still.

Right now, I have been trying to get outside as much as possible when the weather is nice and warm. That way I at least get a different view along with fresh air other than just inside my house. Hopefully by the end of the year, everything will be open. Although I’ve seen that a lot of stores have gone out of business because of having to be shut down and not maintaining revenue.

Jenni

Mental Health Awareness

May is mental health awareness month. It’s been observed in the United States since 1949 and was started by the Mental Health America organization. It is a time to raise awareness of those living with behavioral or mental health issues and reduce the stigma that so many people experience. This also includes promoting increased access to care and treatment.

According to the Anxiety and Depression Association of America, “nearly 450 million people worldwide are currently living with a mental illness, yet nearly two thirds of people with a known mental illness never seek treatment. ADAA is dedicated to helping those living with anxiety, depression, and co-occurring disorders and their loved ones find treatment, support, and resources.” The organization also provides free resources for those in need.

Everyone faces challenges in life that can impact their mental health. It is especially true this year, with so many people having to be isolated because of the coronavirus. Socialization, contact with other people, and having a routine are so important in our lives. When people are forced to break from the norm, it can cause a sense of brokenness, one that forces difficult choices within.

It is even more important now than ever that we take care of our mental health in our current environment. Some ways to do so is by finding the positive in things, owning your feelings, eliminating toxic influences, creating healthy routines, supporting and connecting with others etc. These can help bring a better quality of life to you and the people around you.

Jenni

Things to Remember

These are 12 things to remember in life. I believe they can be just a little something to go by when a situation might come your way unexpectedly. Also, it never hurts to have positive affirmations in your mind while making decisions.

Jenni

Quality of Life

I am aware of some healthcare providers that tend to think people who are paralyzed have a very low quality of life. There are assertions that they would rather die than live with a severe disability. Although some spinal cord injury survivors tend to feel different. I believe every new circumstance in life comes with new meanings, choices, adventures, possibilities and challenges.

There is no question that quality of life means different things to different people and at different times in life. Over time our perception of it changes. When we are younger, we focus on leisure activities, physical abilities and employment. Although as we get older, we place more emphasis on family and relationships.

The same is true for someone who becomes disabled. For the first year or so, they may dwell on what life could have been or what abilities were lost. Although as time goes on most tend to realize there’s more to life than just thinking about the what if’s. That despite what happens we can still go about living however we choose. 

With me, at 16 years old I was still in high school looking ahead at all the opportunities I may miss. It took a good year for me to finally realize that I still had more life to live, just in a different way. Even though I was in a different situation than planned, I can still maintain a good quality of life. That despite my newly transformed way of doing things, my overall values stayed the same and I can still find joy.

Jenni

Words to Motivate and Inspire

As you may know by now from my blog, I love quotes! I’ve written some and also have many books. I also just like browsing the Internet for uplifting sayings. For this post, I thought I would share some of my favorites from a book I have called “Keep Believing in Yourself and Your Special Dreams”.

It’s up to You

This life is the only one you’re given. Look for opportunities to grow, and never be discouraged in your efforts to do so. Replace your weaknesses with positives; take life’s broken pieces and re-create your dreams. Never measure the future by the past; let yesterday become a memory and tomorrow a promise. Begin each day by focusing on all that is good, and you’ll be in a position to handle whatever comes along. Take responsibility for your actions; never make excuses for not being the best you can be. If you should slip, be comfortable by the thought that we all do at times. Determine your tomorrows by the choices you make today, and you’ll find yourself living in joy and triumph. -Linda E. Knight

If You Ever Feel Discouraged…

Hang in there and have patience with yourself in the situation. Live in the moment, one day at a time, not fretting about the past or worrying about the future. Don’t take on more than you have to; learn to let go. Refuse negative thoughts; replace them with positive ones. Look for the good things in your life and make a point of appreciating them. Believe in yourself and know that you have the power to do anything. You are ultimately the one in charge of your life and the only person in the world who can change it. No matter how much others are pulling for you or how much anyone else cares, you must do what needs to be done to make your present and future everything you wanted to be. -Barbara Cage

Be Strong, and Don’t Give up

Remember… There is a deeper strength and an amazing abundance of peace available to you. Draw from this well, call on your faith to uphold you. Life continues around us, even when our troubles seem to stop time. There is always good in life. Take a few minutes to distract yourself from your concerns-long enough to draw strength from a tree or to find pleasure in a bird song. Return a smile, realize that life is a series of levels, cycles of ups and downs- some easy, some challenging. Through it all, we learn, we grow strong in faith, we mature in understanding. The difficult times are often the best teachers, and there is good to be found in all situations. Reach for the good. Be strong, and don’t give up. - Pamela Owens Renfro

The Path to a Dream

The path to a dream is paved with sacrifices and aligned with determination. And though it has many stumbling blocks along the way and may go in more than one direction, it is marked with faith. It is traveled by belief and courage, persistence and hard work. It is conquered with a willingness to face challenges and take chances, to fail and try again and again. Along the way, you may have to confront doubts, setbacks, and unfairness. But when the path comes to an end, you will find that there is no greater joy than making your dreams come true. - Barbara Cage

Jenni

“What lies behind us and what lies before us are tiny matters compared to what lies within us.”
-Ralph Waldo Emerson

“Do not follow where the path may lead. Go, instead, where there is no path and leave a trail.”
-Anonymous

Guest Blog Post by Brody

This is a guest post written by none other than my dog Brody. I thought I would share it with all of you. He gives a great insight into the life of a dog and information about himself.

Hi everyone! My name is Brody and I am 8 ½ years old. I’m a Chinese crested powderpuff and I come from a family of show dogs. I have hair on my head shaped like a crest and my skin is covered in pink spots. My mom is allergic to pet dander, so it’s a good thing I’m hypoallergenic which means I don’t shed. Although that means I need to be brushed daily and taken to the groomers to get my hair cut every so often. 

I love my mom so much! I wait for her patiently, comfort her through hard times and disappointments, and romp glee at her homecomings. I am a registered companion dog for her. I’m gentle, happy, loyal, loving and totally devoted. I follow her everywhere she goes. Also, I have a sensitive nature and don’t like to be separated for long periods of time. 

    

 

I have my own bed and it is my favorite spot to lie in. Sometimes the sun comes in through the window and shines brightly on me, heating me up. I can’t believe I have this whole pillow all to myself! Some other places I like to lay are on the back of couches, on my mom’s lap, and snuggle in her bed.

My favorite thing to do is go on walks with her. I know exactly when it’s time to go; whenever she pulls out my leash and says: “do you want to go for a walk?” Then she attaches it and me to her wheelchair and off we go. In the winter, I like to wear sweaters because they keep me warm. Even though I like my walks, I prefer to spend the remainder of my time indoors 

mostly sleeping.

Some other things that bring me happiness are cuddling, being pet and brushed, playing with toys, and chewing on bones. I really enjoy being around kids, mostly because they are my size and usually friendly towards me. I also know how to do some tricks! I can dance, sit, lay down and even smile when asked.

I’m security/control manager of the house. This includes my mom and all the other people that come in and out of it. I do not always welcome strangers in the yard or house. If I see them I either growl, bark, hide, or run to my mom for safety and assurance. Although, I like to chase after squirrels and I’m not afraid to run towards the turkeys or deer in the yard! 

Brody