Wednesday, May 26, 2021

Guest Blog Post by Brody III

I’m enjoying the weather right now, although it’s getting a little hotter and I don’t like to overheat. It makes me pant and I can’t go as long on walks with my mom. Plus, I’m getting a little older, and I’m unable to go as far as I used to when I was a pup. I turned nine in December.

Bailey and Casey
My mom’s dad’s dog and my best four-legged friend, Bailey passed away earlier this month. He was a black lab. I will miss him so much! My mom misses him also. Although nothing can replace him, I now have a new best friend. His name is Casey, and he is a pocket beagle. He is six months old and just my size. When he comes over, we love to play in the backyard. He plays with all my toys and lays in my beds. Since I’m older than him, I only like to play for a little while. Then just like humans I like my space and time to myself.

I’ve been enjoying my time lately by sleeping on the couch, going for walks, and playing with toys. I only chase after a toy once, but I don’t know how to play fetch. My favorite thing is getting attention from anyone who will give it to me. I love to be petted and scratched on my back. Although, I only like it for a little while, and then back to more independent time on the couch or in one of my multiple beds. I find it comforting to bury my head against my bed, couch or under a blanket.

Me Sleeping on the Couch

Brody

Thursday, May 20, 2021

ABLE Program

The other day, I went to Courage Kenny center for an assessment. I was there for four hours, from 12 PM-4 PM (not including the drive there and back). They have a program called ABLE there that helps people with certain types of disabilities. They are brain injury, cerebral palsy, multiple sclerosis, spinal cord injuries, stroke and other neurological diagnoses. The program of exactly what they do is described in the next paragraph in a quote taken from their website:

“If you are living with paralysis or a neurological condition, the ABLE: Activity-Based Locomotor Exercise Program, may help you. ABLE is based on the most up-to-date scientific and clinical evidence. It’s designed to speed up recovery after a spinal cord injury. The objective is to help your brain and spinal cord relearn motor patterns associated with standing and walking. The ultimate goal is to increase your mobility and improve your health.”

The Treadmill
In my assessment, the PT and OT first brought me into a room that had a treadmill in it. They told me that if I were going to do it, I would get up into a harness and onto the treadmill. Then they have people who would assist me in walking on it. I decided I would wait on getting up on the treadmill because my ventilator tubing (8 foot) wouldn’t reach from my chair to me standing on it. I knew this for sure because I had an assessment a couple of years ago and tried but it wouldn’t reach.

Then they brought to me into the assessment room and first asked me a bunch of questions. Most were on a scale and included questions about my history, feeling, movement, activity level and many more. Then they transferred me to a memory foam chair. First, they laid the chair back all the way, took my blood pressure three times in a row, and then sat the chair up fast and took my BP 10 times in a row. They wanted to see how my BP would hold up in an upright position. My BP went down slightly, but not enough to where it was concerning. This was important because since I have a spinal cord injury, my BP usually is on the low side, and I need to take medication for it.

After this, the OT took measurements of me and then tested my movement. She had a device that beeped when something pressed against it. It’s a way to measure movement based off if it made noise, how long the beep was and how hard the pressure was. Out of all the places they tested, I was able to make it beep once when I tried to pull my right arm back. After doing the program for a certain amount of time, they will revisit this test to see if I’ve improved on movement.

In order to check my balance, they transferred me to a table mat. I sat up on the edge of it to see if I could sit up without assistance. After being held for a few minutes, I was able to balance myself for about 15 seconds. I used to do this with my physical therapist on the edge of my bed. Also, they checked to see if I was able to use my ab muscles to pull myself forward and back muscles to pull myself back. I was able to fire my back muscles, but not the front.

Table Mat

The last thing they did before transferring me back to my wheelchair was had me stand up. There were 4 people that helped, one in back holding my backside, one in front holding my knees, and 2 on each side of me grabbing under my armpits. Simultaneously, up I went for about 10 seconds until my left knee buckled. It still hurts a little sometimes from when I injured it a few years ago standing in my wheelchair. Although I've been wearing a knee brace at night and that's been helping.

I believe in this program and have proof from a friend of mine that’s in it that it works. His injury is below mine and not on a vent but is paralyzed from the shoulders down. He’s been going there for over three years and has gained a lot more movement than he had before. He used to use a sip and puff to drive his wheelchair like me, but now he can move his arms enough to drive his chair with a joystick. He also said there were other people who have gained more movement since starting. These are just a couple examples of the benefits that the ABLE program has.

Overall, it was helpful to do the assessment to see where I’m at now and how far I can advance in the future. When I start, I will be getting on a regular schedule of twice a week, for 2 ½ hours at a time. If I were going to do the treadmill as well, I would be there for longer. The first session is for 6 weeks in a row and then they will assess me again. I can’t wait to see how much I progress over time. I’ll keep everyone updated as time passes!

Jenni

Tuesday, May 11, 2021

Patience in Life

In my situation, it takes a lot of patience in order to live a happy and fulfilling life. It’s naturally an essential part of daily living, but especially when I have little to no ability to do things on my own and rely on others to do them for me. Having patience means being able to wait calmly in the face of hardship or frustration, so anywhere there is some-i.e., nearly everywhere-we have the chance to practice it.

We give ourselves the power to choose how to respond to specific situations when we are patient. It allows us to stay collected no matter what is happening. I’ve learned this throughout my life of being paralyzed because of my needs from those around. I need to wait every time I want something done. One thing to remember is that patience puts us in direct power of ourselves. Along with this, there is no more influential an aid to success then confidence.

So, how does one practice patience? It seems that at an early age we are told that patience is a virtue. However, very few of us are ever taught how to be patient. Patience is something we constantly do, not something we have. The more we practice it, the more patient we become. I know I need to remain calm throughout every obstacle that comes my way in life. Included with that, it’s only through patience that we truly learn.

Jenni