I know what it's like for me because I live it every day, but I wonder what it's like for other quadriplegics in my situation and if they do the same things I do. I wonder if they do range of motion and how often. I wonder how many times a day they change position. I wonder how long they can be up in their wheelchair. I wonder if they have occupational, physical, or massage therapy. I wonder what type of technologies they have to be independent. I wonder how they get around to different appointments and stores. I wonder if they get adequate staffing to assist them. I wonder if they are accepting of their situation. I wonder what they say to themselves in times of struggle. I wonder how much they are like me.
Jenni
3 comments:
Ah - I think this would be interesting too! Espeacially in how such injuries vary in accordance to treatment between countries. E.g. in the US to UK - where UK is obviously free, but US comes from insurance.
It'd also be interesting to know how it varies by age - for example between yourself, and Margaret Romph whos story you share a while back!
You'll have to blog if you find anything out!
Oh my the stories I could tell! After 15 years of working with quads I have the answers to all these questions. I have worked with 13 quads and they are all very different. Would love to share with you and most of the quads I know are always looking for company and would share their life story and info with you. Let me know. Krista
Hi, I am interested in the speech recognition software that you use. My son, Rosco, has c5 -c6 quadraplegia . He would like to go to college, and needs the speech software. I have seen several, but wanted your opinion, Thanks, Darlene
Post a Comment