Happy Holidays

This past week, I’ve been snowed in. I also had to cancel going to ABLE because of the weather. There was a huge blizzard Wednesday and Thursday along with cold temperatures. So, I’ve been hiding inside. The last time I went out when it was this cold, my tubes expanded and started popping off everywhere possible. Plus, since I have a humidifier connected to my ventilator that heats the air I breathe, it leaves moisture in my tubes. If the water drops get too cold, they form icicles!

Merry Christmas to all! Christmas Eve we were supposed to have my sister and her family over for dinner with a meal of prime rib. Although she hadn’t been feeling well for a few days and ended up testing positive for COVID. I felt so bad. Especially because Christmas is a time for gathering. My mom, Sandy, and I ate grilled cheese and tomato soup. A first for Christmas Eve dinner!

Midafternoon on Christmas day Kristen’s boyfriend, Anthony, brought my 2 nieces over to unwrap some presents. Kristen hopped on video using my mom’s echo show and was able to watch. Good thing for technology these days. Later, for dinner we ate lasagna with my other aunt Julie, her husband Pat from Duluth, and my grandma and grandpa. It was a nice weekend visiting family and celebrating Christmas.

Today, I played a couple rounds of yahtzee with my niece (I got her the game for Christmas.) She caught on quickly; I haven’t played in a long time. We did have the meal that we were going to have Christmas Eve, only my sister still wasn’t feeling well. I am hoping she feels better soon, and we can all be together. For now, I plan on going to ABLE this week, since the temperatures are going to be in the 30’s.

I hope all of you had a lovely holiday.

Jenni

Accomplishments

I’m heavily involved in the spinal cord injury world, as my focus is to share information about research going on, resources for information, and creating content for others to learn more about what it’s like as a SCI survivor. Hence the reason why I write blog posts and volunteer so often. As in my last post about becoming an ambassador, I am an advocate for people with SCI and others within the community.

As an ambassador, MSKCT has provided me with a wide range of free, #researchbased resources to help #SCI survivors, family members, and others looking for information, including a toolkit for my position. To learn about the ways #SCI impacts depression, bowel function, sexuality, and more, visit https://msktc.org/sci. You can also learn how to become an ambassador if you visit their website, without adding SCI at the end.

My mom and I recently did a video interview with the Morton Cure Paralysis Fund (MCPF). “In 1995, Peter Morton broke his neck in a bicycle accident that left him paralyzed from the neck down and unable to breathe without a ventilator… Now, twenty six years later, with the help of dedicated donors and volunteers, MCPF has raised over $5 million for cutting-edge research in the United States and around the world.”

Devastated by the tragic accident, friends turned their hurt into hope. With little more than a dream, That All May Walk Again, they launched a small golf tournament in Morton’s hometown to raise funds for spinal cord injury research—and the Morton Cure Paralysis Fund (MCPF) was born.

Lately, they’ve been doing podcasts on all different platforms, interviewing others with SCI and people revolving around. During our video, my mom and I answered questions related to and about our experience after my spinal cord injury. It recently launched on YouTube and their website. You can view it by clicking on this link.

My biggest focus right now is on finishing my memoir for others to read. I’m hoping that it helps people along with sharing my story with others. Since I’ve been writing poetry, it’s been an easy way for me to develop my writing skills. It helps with creating in-depth content, metaphors, images and more. I suppose that’s why I haven’t finished it yet. I have been so into writing poems that I’ve kind of put my memoir aside. It’s difficult to not write poems, since I subscribe to the website.

Jenni