A Way to Fill My Cup

 If you know me, you’d know that I love helping others. This includes, but is not limited to motivational speaking, sharing my story with others, volunteering, etc. The Pandemic put a real damper on my situation as a quadriplegic paralyzed from the neck down. Aside from my spinal cord injury, the “stay-at-home” order was one of the most difficult times in my life and had a profound effect on me.

I know for a fact I’m not the only one. According to the World Health Organization (WHO), “Plenty of us became more anxious; but for some COVID-19 has sparked or amplified much more serious mental health problems. A great number of people have reported psychological distress and symptoms of depression, anxiety, or post-traumatic stress.” 

I tried everything to make myself useful in a time when all I was able to do to connect with others was on my computer, video or over the phone. That’s when I decided to find ways to help people through the web. I searched many different places but didn’t really find anything that suited my capabilities. Other than being able to blog, write poetry, and work on my memoir, it’s been difficult these past couple of years. Even now that the order has lifted, I haven’t reconnected with friends or gone out many places.

Recently, I was on the web searching again for different things to do relating to spinal cord injuries. I came across this website called Model Systems Knowledge Translation Center (otherwise known as MSKTC). Within their website, were various amounts of information for people with SCI’s, TBI’s, and Burns. After reading some of the information, I was floored at how much knowledge and help they had for people in my situation and alike. 

I also saw that I could become a “SCI Ambassador” to help people with spinal cord injuries. I had to fill out some information about myself and complete an application. This was exactly the type of thing I was interested in doing. As stated on their website, below is a more in-depth description of what they’re looking for:

“Are you passionate about helping people living with spinal cord injury (SCI) and their families? This could be the perfect role for you! The goal of the Model Systems Knowledge Translation Center (MSKTC) Ambassadors Program is to inform, empower, and help individuals with SCI live well. We are looking for people living with SCI, their families, and those who support them to serve as ambassadors. MSKTC ambassadors will actively promote and share free, evidence-based resources from the MSTKC to help people with SCI live well when interacting with MSKTC's audience and the wider SCI community.”

After reading this, I applied for the position immediately. Then I set up a Zoom visit with them. My main mission is informing others about how they can help others by using their resources. It’s great that I have platforms (including my blog and help of others) to spread the word about MSKTC and all the help they can provide for people in need. If you browse through their website, there are many “user-friendly resources… available in a variety of formats such as printable PDF documents, videos, and slideshows.”

I hope you can check out their website for information to not only use as a resource for yourself, but pass on to your friends, family, or others in need. An easy way is by sharing this blog post or their website by clicking on their website address: https://msktc.org/

Jenni

If you have any questions, please feel free to reach out to me or contact MSKTC for more info.

Two Decades

After any change in life, there is an adjustment period. It’s how we adapt or become used to the changes that occurred. Without a doubt, experiencing a spinal cord injury is a challenging and new situation. When it happens, adjusting to living with SCI, can be hard; especially when trying to put your life back in order. Everyone has their own way of dealing with it although continuing to alter changes in life can be similar.

Going home is a major step in adjusting to life after SCI. It can be exciting to get back to the comforts of home. It can also be scary if you are unsure of what to expect once you get there. Having to get used to a “new normal” daily routine takes time. In my situation, I had to learn what it’s like to have others take care of me (not having as much independence as before.) 

I often say “it feels like I’m doing things for the first time” as I learn how to do activities differently. That feeling has faded as I worked through problems and figured out the best way to manage my daily routines. Despite experiencing a mix of emotions, I try to keep my mind occupied since I’m no longer able to physically do things.

It’s been two decades since the car accident that forever changed my future took place. I know I’ve written on my blog about positivity and hope, some of the very feelings I needed to thrive. Although at the time, I was very uncertain as to what the future would hold for me. Thankfully, I had friends and family supporting me, helping along the way. 

I chose a life of happiness, not wanting to live my life with immense sadness, anger, or depression. I can’t speak for others who experience traumatic events. Only how my life played out and thereafter. I feel very fortunate to have people by my side, helping me throughout the way. Although, there were moments after in which I had to take time to heal my emotional equilibrium.

I do believe that everything happens for a reason, no matter how challenging or difficult it is. I’ve always felt that there was a reason why I survived. Maybe it was to help people in my situation or open someone’s eyes to what it’s like living with a disability. Sharing my story with others, whether it be using my blog or motivational speaking can be a way to express my feelings. 

Whatever it may be, I’m glad that I did. Life is short, so I try to do the best I can at living it to the fullest. Don’t take things for granted, you never know what can happen.

Jenni

Newest poems:

Living Life

Striking my inner being

like lightning bolts

times of a troublesome past

paralyzed body no longer breathing

trying to heal from the inside out

realizing life is worth living

Stress in Life

Nerves press firmly against my cortex as

boiling blood gushes through my veins

clouding my judgment,

clogging paths to relief

Frontal lobes on fire

my eyes water with fury

twisting and turning thoughts

scrambling my brain leaving it to rot

Struggling to maintain composure

bumps in the road create challenges and obstacles

stress of becoming paralyzed leaves emotional scars

slowly emptying all that’s left within me

Question everything that’s happened

How? Why? What now?

the day is ending

pain explodes beyond measure

Courage finally intervenes

willingness to survive has arrived

despite past feelings of doubt

my mind finally is free