Being in the Hospital Is No Fun

On October 15, I had 2 seizures around 8 AM. The first one lasted about 8 minutes, and the second one about 2. I’m on 2 seizure medications to prevent having one, but not if they are related to something. Since the first seizure lasted more than 2 minutes, the protocol for me is to call 911. I was completely out of it from exhaustion, but I do remember the ride to the emergency room.

When I got there, they did some testing to see what might’ve contributed to the seizures. First off, I already had a high temperature. Mine is usually around 97° and I was at 99°- 101°. They took blood, x-rays, CT scan etc.-anything that would help to figure it out. The results were a higher white blood cell count and pneumonia. We think pneumonia was what caused the seizures. In the past, I had seizures that link to bad infections like bladder or lungs.

I was in the ER for 3 or 4 hours and then they moved me to the ICU. I spent Monday the 15th-Saturday the 19th (my birthday) in the hospital. They put me on IV antibiotics, which helps get the infection under control faster than the pill form. Once I was stable, I was able to go home on oral medications. Before all this happened, I was having to suction quite often with colored secretions, so I knew something was going on.

It took a couple of weeks to recover after I got home. I was weak and couldn’t go to ABLE because it was hard to even function during the day. I was pretty much feeling the same as before everything happened, only not miserable so I knew I was on the mend to healing. After being so sick, it takes time for my body to bounce back to normal. I’m finally there, able to withstand being in my wheelchair for the normal amount of time along with my regular routine.

Also, it does take a while to create blog posts, since talking a lot on my computer can be exhausting sometimes. I’ve been writing this post on and off for a while now. I would’ve finished a while ago, but most of my time spent on the computer is writing poetry. I posted one of them below although you can also check them all out by clicking on this link: my poems

Jenni

“A hero is an ordinary individual who finds the strength to recover to persevere and endure in spite of overwhelming obstacles.”-Christopher Reeve

Inner Strength

After severing the sky with lightning

thunder roars inside me

as my strength gives way at times

when I struggle to live my life

Feeling unjust in times of trouble

and lost in crowds of people

where I can’t find my inner being

as I’m clouded by my ongoing paralysis

Hope is me holding onto an

unknown future in which I remain

calm within my feelings

realizing just how beautiful I am

Then a gravel path visibly opens

when my consciousness clears

in which I preside to roll down

to see where my beginnings live on

Life as a Quad VI

Being a high quadriplegic takes a lot of strength and effort for me. My mind is constantly trying to fight with what my body wants to do but can’t. Loss of mobility has changed how I live life and the way I approach certain situations. A few of the most important things that I need to keep in focus are my mind, health, and spirit.

Something that’s difficult is keeping my mind at bay since it’s the one thing I can control. Since I can’t fidget or just move around when I am bored, it takes a lot of effort to just sit there and do nothing. For most people, they may enjoy that “quiet time” or break in their day. For me, it is difficult to just lay there doing nothing as I’m constantly thinking about something.

I read a paragraph about “checking in with yourself” online. It says the “strategy of checking in with yourself is a conscious effort to understand and acknowledge your current state of being. This strategy can involve several practices like mindfulness, journaling, or simply taking a quiet moment to reflect on your feelings and thoughts.”

I found that it was comparable to my situation. I’ve heard of many quadriplegics who might experience emotional and behavioral problems after a spinal cord injury. This can include feelings of sadness, anxiety, or clinical depression. For me, I have experienced all these emotions, and more, at some point over the last 26 years since becoming paralyzed.

After my mind, well-being is what I try to concentrate on. It’s not easy balancing everything, including my spinal cord injury. I’m constantly fighting with what my mind wants to do compared and what my body wants to do. Most days it’s not the same thing, and it can be frustrating and exhausting. Not to mention the trying to “not do” everything I want to. That includes going places, doing as many activities as I want, and being outside every day.

Over the last few years, I’ve slowed down in what I’ve been doing day-to-day. Although I feel strong inside, I wear down more easily. I find I can only be out somewhere for only a couple of hours before I’m exhausted or my social battery runs out. Often, I feel overstimulated, leading to stress and anxiety. In rare occasions, I need to remove myself from the overwhelming environment.

Some common triggers for crowd anxiety include the level of noise, activity, chaos, or the fear of not being able to leave quickly. This happened to me this year when I was at the Minnesota State fair. The crowds of people around me and not being able to find ways to tell others to “move out of my way” became an issue. I had to go into the bathroom, which had multiple stalls, but had cool air and less people. On that Sunday, August 22, 2024, it set a record for the most people being at the fair, at 256,015.

Adjusting to life after becoming paralyzed has been challenging, involving emotional, physical, practical, and psychological feelings. I’ve experienced physical limitations and emotional distress that can make daily activities more challenging than usual. One thing I try not to do is push myself too hard. Even though it’s not easy for me, I have realized over the years that it’s okay to take breaks and give myself time to heal both physically and emotionally. 

Jenni

Overdue Update

It’s been a while since I’ve written an update. The biggest news is my accomplishments at ABLE. I know I’ve written quite a bit about it, but the exercises that I have been doing have helped me in big ways. I still do the same ones but have improved in length of time and structure. 

After hooking up the electrodes to my abs, obliques, lower back and between my shoulder blades, I’ve been able to successfully sit on the side of the mat by myself without help. The PTs that I work with just sit down and keep their hands close to me in case I start leaning over. It’s also helped me be able to sit forward in my wheelchair without help to get my back brace and my sweatshirt on and off. This also includes stretching my back.

To recap about what electrical muscle stimulation (E-stim) is, it can be used to help treat pain and heal injured, weak, or diseased muscles. Electrical currents may help improve blood flow and stimulate the muscle fibers or nerves. They also use it on my arm’s, and then move them simultaneously into bicep/tricep curls, along with forward reach and grasp (essentially moving my arms forward and then backwards.) 

They do each set for about 10 to 12 minutes at a time, then I take about a 3-5 minute break between each one for 1 hour. With my abdomen, the stim runs for an hour also, and then I move myself side to side and back and forth. On Wednesdays is when I do stim on my abs and then move myself side to side, and on Fridays I use a bicycle that moves my legs and then stim on my arms. 

Each session wears me out completely, and I usually need to take naps after. Then I get into bed earlier and go to sleep earlier. It’s a big workout for my body, especially being paralyzed from the neck down. I’m very lucky that I have feeling, and can tell which muscle I am using, tightening it to move the way I need to. It really helps with ABLE.

I’ve also been obsessed with writing poetry. So much so that writing my book and inserting posts on my blog have been put aside. I go on the website at least twice a day, finding topics from contests to write about. Sometimes, I feel guilty for not writing my book or my blog for so long, but I’ve been improving my writing skills a lot lately with writing my poems. I would like to publish a book with poems I’ve written in it. I have posted my most recent ones below.

For quite some time now, I’ve been having bad neck pain. Talking with my therapists and doctors, neither could locate the source of it. After dealing with it, I finally made an appointment with my neurosurgeon. Tuesday was one of the longest I’ve had as far as appointments go. I left my house at 12:30 PM and didn’t get home until almost 6 PM. First, I had an MRI then a CT scan, then saw my doctor. Since I can’t have anything metal on me for the MRI, the respiratory therapists there needed to change out my trach. Mine has metal in it; they also changed from my ventilator to an MRI safe vent.

It was a very uncomfortable and difficult time but needed to get done. The results were good and bad. Good in that they didn’t find anything that would cause any harm, like a bone spur or my bones to be digging into muscles. Although, bad because it didn’t explain why my neck is hurting. My doctor thinks it’s hurting from muscle or nerve pain, which is what I thought as well. It’s also a thought that my wheelchair needs to be adjusted and that may be the cause.

For now, I’ll continue to do as much adjusting as possible to avoid it. I’m grateful for ABLE as it has been helping with my balance and moving. I’m also glad that I came across the poetry website so I can increase my creativity in writing and use that while writing my book. Hopefully soon I will get back to my book and finally be able to share it with all of you. In due time!

Jenni

Here are some recent poems I’ve written. Enjoy!

When Everett saw me

I was only gone for the day,

when I came home, Everett saw me,

he ran towards my footrest,

climbing his way onto my lap

Ever since that day happened,

he’s found his way up several times,

I don’t know how he can jump that high

but I was smiling ear to ear

There are many more moments,

in which my dog has made me happy,

but learning that he recognizes 

that his mom in a wheelchair, tops all

My Dog Everett

One ear up, one ear down

zooming around the yard

bouncing in the snow

with no place to go

Barking at the TV’s

and the squirrels in the trees

playing fetch with his toys

making all sorts of noise

Loves every dog he meets,

including the people he greets

if he could have his way

he would play all day

Everett is his name,

he likes to play all sorts of games,

a Chinese crested powderpuff

and he thinks he’s really tough

Oh, to fly

I wish I could fly like a butterfly,

soaring high into the open sky

with invisible fences around me

feeling the fresh air on my wings

I would fly to many places,

above the earth’s green grasses

go sailing in between the clouds,

dancing with the stars and sun

Since I can only imagine flying

I’ll close my eyes and think of

taking flight into the unfamiliar

finding a stick to land on to

the hot sun shines down

on a wild goose in water

soaking up its twin

Lack of Motivation

It is normal for people to experience a lack of motivation in life sometimes. However, when it becomes severe or chronic, it may indicate an underlying condition that could be serious. Loss of motivation can sometimes lead to burnout, depression, etc. I’m no expert when it comes to diagnosing others with symptoms and I especially can’t attest to which people experience it worldwide. Although, I can share my thoughts about my own motivation in life.

For me, it has to do with passion, interests, inspiration, progress, etc. Also, if I don’t feel up to doing something, I might be inclined to say “no” despite what the indication would be. If that happens a lot, I may not notice it and continue going down the same path. Although if others are willing to tell me, I go back and re-evaluate to see if there’s something I could be doing differently.

Another thing that’s worked to get/stay motivated is to go over the ways I have found in the past to keep me motivated. This includes all aspects of life, projects, relationships, etc. Some ways are to set small goals to build momentum and reward myself for the little things as well as the big ones. I’ve noticed this being the most helpful when I’m writing, whether it’s poetry or for my book. (Although I suppose it hasn't helped when it's come to writing blog posts!) I stay on one task, before going to the next.

I noticed that after my accident, when there were moments when things got tough, I would either keep a positive mindset or spiral down a path of unpleasant feelings. This also came with what was going on in my life at the time. School was a big one, and even to this day lack of independence makes things tough to deal with. Over time, I learned to only take on as much as I could handle, and not overwork myself.

Jenni

Here are some of my latest poems from the last month or so:

Things Happen for a Reason

I’m at a crossroad in my journey knowing,

that the entrance to the tunnel is my only way out.

It might simply be chance that brought me here,

needing clarity in a moment of struggles.

Trying to make sure all my bases are covered,

because going backward is not an option.

As I walk down the path towards the entrance

thinking “how my life will change forever?”

After that day I never stopped to wonder

“What if I was able to go another direction?”

Realizing that “things happen for a reason,”

becoming paralyzed is the end of this equation.

Loss of Movement

My restless body stirs screaming out,

like a wanderer of burdensome shown

limbs once agile find themselves bound,

in realms where muscles falter and cease to dance

How my loss of motion brings my spirits low

in the silence of stillness my hope falters

within these confines a fire burns out

a flame once resilient that light up the dark

Whispering for the grace of movement

like gentle waves caressing the shore

though my limbs may be still my journey persists

for within still moments my strength rises

Red Wings in Winter

Beneath a tapestry of Minnesota skies

in the hush of winters icy cold woods

sitting on a branch of a snow-covered pine

a scarlet red cardinal spreads its wings

Painting a picture of a breathtaking scene

a symphony of movement from tree to tree

its wings flicker in the golden sunlight, 

feet that carve through the frigid air

Rounding Out the Year

On November 26, I was admitted to Methodist hospital for major G.I. problems. They also figured out that I had something called Norovirus (basically like the flu with some of the same symptoms, but worse.) The virus had been going around through my family, but it only lasted about 24 hours or so, making them think that it was just the flu. Since the seriousness of the G.I. problems were so bad, I was in the hospital for 10 days, getting released on December 6. I am feeling much better now, and hopefully I can avoid the hospital.

I was sad to cancel my appointments with therapy and ABLE, missing it 5 times. When I finally went back, I had to take it easy because my body wasn’t used to all the physical work. Now that I’m back to my usual routine, it’s gotten easier every time. I continue to push myself each session, leaving me with the best possible outcome. I’m loving how much I have gained by going to ABLE, including balancing upright by using my core muscles.

Since today is Christmas eve, we are having my sister, her boyfriend and 2 of her 3 kids over for dinner. Tonight, we are having prime rib and tomorrow we’re going to have turkey (basically a repeat of Thanksgiving!) Christmas Day we’ll open presents with them and all 3 kids before we eat. 

This year is unique because it’s a brown Christmas. The few snows we’ve had this year haven’t stuck around. It’s even supposed to rain tomorrow, and temperatures are higher than normal. In 2021, there was no snow on Christmas, but it’s been a little over a century since there was no snow into the first months of winter. Although I have been able to take Everett for a walk most days, which has been nice.

Other than that, I’ve been mostly writing poems. I posted some below that I wrote in the past month or so.

Jenni

[ Soft flakes lightly fall ]

Soft flakes lightly fall

carpeting the ground in white

Winter’s serene hush

A Sunset

A sunset over the lake,

where colors bleed and blend,

a canvas of nature's art,

when time appears to delay

The sky is dyed in hues,

of crimson, gold, and pink

the sun slopes below the horizon,

a moment we cannot miss

Mr. Claus

In winter's chill, when evenings are cold,

a jolly old man with a heart of gold

bringing gifts to children young and old

his name is Santa, his legend bold

With a smile, he rides through the sky,

in a sleigh pulled by reindeer, so high,

they dash across the stars, with a twinkling light,

while Santa spreads joy, on Christmas night

Celebrating Milestones

Looking back, I had no idea how my life would turn out after my accident. At the time I was so focused on surviving that I didn’t have time to think about it. Although my positivity about moving forward has helped in many ways. Big or small, I’ve experienced many ups and downs, good and bad times.

Today marks the 21st anniversary of my car accident. Marking the day of my anniversary has always been a celebration. It’s my way to commemorate living, grateful to be alive after what happened. That also involves the obstacles I’ve overcome throughout my journey, including milestones.

According to an article about milestones in SWnewsmedia.com, a milestone is “an action or event marking a significant change or stage in development.” Whether a milestone is “big” or “small,” depends on the meaning that’s attached to it. For example, milestones could be birthdays, achievements, anniversaries or even a baby’s first steps.

Why is it important to celebrate milestones? It’s good to note the growth, progress and accomplishments that can influence people’s lives. Milestones can be a sign of triumph over challenges and can contribute to developing healthy self-esteem. 

Celebrating milestones isn’t just about having a party, it’s a way to show people that they matter and that their lives have meaning to others. How people celebrate milestones varies. You can even celebrate your own triumphs and milestones. Oprah Winfrey says, “The more you praise and celebrate your life, the more there is in life to celebrate.”

In my case, it includes my anniversary, reminding me of the struggles I’ve overcome afterwords and along the way. Recognizing my milestones gives me a chance to look back and see what got me to this point in life. Another opportunity to think how, moving forward, I want to best serve the rest of my life.

I’m thankful to the people who have helped me throughout the way. This includes family, friends, nurses, hospital staff, etc.

Jenni

What about you? What milestones are you celebrating?

Here’s a challenge: Take stock of the milestones you already celebrate along with some that you might want to add to your life. Why are these milestones important to you? How do you want to celebrate them and who will be included in your celebrations?

What's new?

I’m now a proud aunt to a 3rd baby girl! On October 16, 2023, Emersyn Scott Steinman was born. Sisters Avery, 10 and Madilyn, 3, are happy to have another sister. Now I have another niece to spoil! I shared some pictures below. Also, my birthday was the 19th. I didn’t do much, except have some cheesecake after dinner. I don’t eat many sweets, so that’s a big deal for me. Although I do love cheesecake.

Emersyn and Me

Emmy

Madi, age 3

I’m so glad the pandemic is pretty much over. It’s allowed me to get out of the house more. That especially means ABLE, which I have been working hard at still. I believe being able to go to Sister Kenny twice a week has been one of the most beneficial things for me. Not only physically, but mentally as well. Being able to focus and connect the two is vital, especially for someone with a spinal cord injury. It also feels great to get some exercise.

I remember back when I was talking about how much water weight I had gained, causing edema. After being in the hospital in the beginning of March 2021, I wrote about my progress. The following quote is from a blog post I did August 9, 2021.

“Since being in the hospital to try to find the source of my edema, I’ve lost over 20 pounds of fluid. I guess they were right about my seizure medication being the source of my water weight gain. I feel so much better, and people have been noticing a significant difference as well. There is more fluid that I could lose over time, and I believe ABLE will help with that.”

After weighing myself this past Saturday, I can successfully say I went from 190 pounds before the hospital down to 134 pounds. That’s a total of 66 pounds, and I’m pretty sure most of it is water weight. I’m not trying to lose anymore, as I’m feeling healthier and better. I really notice a difference from the pictures I shared above with Emmy and the ones I shared in 2020 with Madi when she was born.

Jenni

Here are some recent poems I have written:

Feeling Pain

Pain walks into my life

needing more than I can give

no matter how loud I scream

it doesn’t ever want to leave

Like a homeless dog

who comes to the back door

wanting nothing more than help

not able to give it attention

Unlikely to leave me soon

I’m forced to feed it even more

finding a space within me

might take some freedom away

Lights flicker when I leave

any room between the gates

showing just how much I feel

like it will never be the same

An unbearable task at hand

I’ve come to an agreement

I seek for freedom to live a life

where doors are always open

Opening up

Something came into the world,

changing me, broadcasting out

ways I would have never known,

without experiencing this time

Feeling the movement growing

seeing strength outside the plain

breaking open, becoming bigger

I step beyond limitations aside

Using a footstool to reach higher,

diving into an ocean of beauty,

ripples spread, touching others,

giving eyes to see and ears to hear

Shedding away, opening my core

grateful to be alive during this time,

allowing an experience to view

vulnerable sides showcasing time

Newest Update

Since my last post, I was back in the hospital for another respiratory infection. It wasn’t pneumonia, but it was bad enough for me to be admitted. I went into the emergency room and was admitted on August 5, then was discharged on August 9. They sent me home for 2 days then I was back in the ER on August 11 for 6 days. The reason I went back into the hospital was because my mom, nurses, and I all repeatedly told them I wasn’t ready to go home, but they kicked me out anyways. 

Before leaving, I was still feeling sick and having all the same symptoms. Although the hospital said, “they recommended that I continue current antibiotic measurements and that I could do that at home under the supervision of my nurses.” I’m feeling much better now and have been healthy since. I went home with a PICC line (it’s like an IV, but it is a type of catheter to access bigger veins.) It can also be left in for a longer period, but there is a dressing on it and needs changing once a week (mine was by the crease of my elbow.)

One thing that happened this time is I also had issues, although it wasn’t with my wheelchair, but my ventilator attached to my wheelchair. My vent plugs into my wheelchair which charges it and is also like an “external battery” for it. The vent internal battery lasts about 30-40 minutes and when it’s running off my wheelchair, it lasts as long as my wheelchair battery is. At some point at time while I was there, my vent started beeping “low battery,” so we used the plug-in to the wall instead.

Before I went home, I had to have the wheelchair company come to the hospital to figure out if they could fix whatever was broken. He found that the converter box (a black box that the wheelchair battery and ventilator battery plug-in to) was crushed. I’m sure at some point when I was repositioning in my chair, I must have leaned into it. Then, over time the box continued to break down and it chose that moment to quit working. Anyway, at first, he said they would have to order a whole new one, but then she was able to fix it on the spot. About a week later, someone came to my house and replaced the box.

Since being home I’ve been staying low key, writing poetry, getting outside, taking Everette for walks. I’ve also been continuing to go to ABLE whenever I can. Nursing lately has been a little spotty and it doesn’t work to go on days when there isn’t one. The best part about going is learning new things and gaining more movement. I took a video of my latest progress and will share it in a separate post. I'm always amazed at myself and have been told that by others.

If everything works out, I will continue to go there as long as I can. Nothing can stop me from reaching my dreams. Over time I have gained more arm movement and core balance. The one thing that stops me short on some days are my arm exercises. I get major pain in my neck and arm sockets. It could be a combination within the arm exercises and my wheelchair. I’m planning on seeing a doctor about my arms coming up soon.

The most exciting news since my last post is that my sister is due again in October. Now I will be an aunt to 3 girls!

I am hoping to update sooner than 4 months, as my posts have become longer and random. Although every day I’m new writing poems and entering them into contests. I have shared some of my recent ones below. Thank you for your patience.

Jenni

Natures Grace’s

Sunlight dances piercing through cirrus clouds

rays of light shine causing shadows to scream loud,

Like molten cream the sky is full of many hues

emitting molecules scattering violets and blues

Feeling a heaviness lumbering tirelessly through

evergreen trees that stick together like glue,

Strong roots run deep entangling underground,

sending secret messages beneath the loamy ground

As brisk breezes brushes across center retrieves

running its fingers between the crimson leaves

Lifeforms unpredictability like ribbons of sound

breathing in the crisp air from oxygen around

Times when there are changes between seasons,

with lessons at the same time as life’s reasons

Tapestry of nature whispers secrets in the streams

carrying them around Earth’s beautiful bright beams

Crossing an Intersection

At an intersection to cross the street

when the light turns green “what should I do?”

I’m in a wheelchair trying to be discreet,

I wish I could walk when the sign tells me to

There is no wheelchair symbol flashing,

just words saying “walk” or “don’t walk,”

when I see that I just start laughing

there should be a voice that starts to talk

Wondering what people would think,

if there were words saying “roll” or “don’t roll,”

they might get a kick or need to rethink,

maybe they’d get confused or lose control

Figuring out how to have it both ways,

for walkers and rollers lessening the confusion

there could be a custom-built phrase,

saying “cross” or “don’t cross” for inclusion

Who is following me?

Getting smaller as I charge for it,

growing taller as I walk away,

constantly creeping beside me

lurking in my every movement

Shifting shapes in the sunlight

dimming within the moonlight

learning to accept the fact,

that I can’t get away fast enough

Feeling fearful and empty inside,

it always has a hold of my sight,

despite all the dark there is light

behind my shadow to show itself

Visit to the Hospital

Two weeks ago, I went to the Emergency Room because I was feeling short of breath, my oxygen was low, and I was having to be suctioned more frequently. They did a chest x-ray along with blood work. The ER doc looked at my x-ray and thought I had a mild case of pneumonia. My white blood count was also high, which could coincide with an infection. He put me on a week’s dose of an oral antibiotic.

Despite being on an antibiotic, last Wednesday I started getting worse. I decided to take another trip to the ER. Based on the symptoms I was still going through and results from different tests, this time they decided to admit me to the hospital. I was in the ICU for a day and ½ then transferred to a different floor. The reason they admitted me, was so they could give me IV antibiotics. Much more powerful than oral ones.

My nurses come into the hospital with me and sit by my side. Although they can’t do anything “nursing related” they can help me with things I need at bedside, along with conversation. Since the hospital is so busy, they can’t exactly assign an aid to sit in the room with me and help with all my needs. If I don’t have someone that can be there all the time, I’m stuck by myself with nothing to do.

Also, my family helped as well. There’s nothing worse than being away from your own things and environment. Whenever I admitted to the hospital, I end up bringing “everything but the kitchen sink.” In other words, packing and getting a lot of things from my house. My mom even brought me some food as ordering the same thing at the hospital can be boring.

I received more tests, pricks in my arm, blood draws, a pic line placed, along with the antibiotics and rest. I’m glad to say I bounced back quickly and was discharged from the hospital this past Saturday afternoon. After getting in my wheelchair and about ready to leave, I noticed something very critical. Within all the chaos, I forgot to bring something that would’ve been very helpful: my charger for my wheelchair.

When they turned it on, I realized it was completely dead. There was no way I was able to drive myself out of the hospital. My wheelchair can be put on a “manual mode” but it’s very heavy to push (more than 500 pounds with me and it.) Plus, there was the added maneuvering around corners, through doorways, elevator, van, and into my house. My wheelchair was facing the wall, so I sat there for 15 minutes before deciding to have them turn me around manually to at least watch some TV.

After about 30 more minutes, they turned my wheelchair on, and I was able to drive it. Although we figured out that it must’ve come unplugged when they turned me around because I had just enough juice to get in the elevator and to the waiting room. So, I had to stay in the waiting room for about 40 minutes while it charged. Luckily, I was in a bigger space with windows surrounding me. With that amount of time, I could drive myself into my van and get situated.

Although, by the time I got home, it was dead again. I was in the driveway with my wheelchair plugged in to outlets on the house using an extension cord. Figuring it would take another 40 minutes of charging, when it was unplugged, the battery was still dead! My aunt, Sandy, and my mom just put it on manual and got me into my house because I didn’t want to wait in the van any longer. Regardless, I was discharged around 2:30 PM and got in my house close to 6 PM. It was a long day for everyone.

Despite everything that happened, my health is back to baseline, and I feel 100% better. I even went to ABLE yesterday and am also planning on going tomorrow. Hopefully I won’t have any more infections, although my allergies are acting up because of the weather. The smoke from the fires in Canada are making our air quality bad, which makes it impossible for people with “breathing problems” to go outside.

Jenni

Recent poem I wrote for a contest about joy or hope:

Strangers Bring Hope

Fresh flowers placed on a someone else’s grave

showing others care for strangers in need

helping to open all the doors that are closed

bringing hope to those who are mourning

Symbolizing the frailty of one’s lifetime

bouquets representing condolences and grief

a form of ongoing memorialiazation to them

leaving something in their honor to remember

Reflection

Reflection

It’s been a busy month. As usual, we have had some snow days in April. Some have even prevented me from going to ABLE. One day we went from 80°F to the next day of 30°F. I guess that’s Minnesota for you though. We’ve also had some flooding of rivers and lakes. Even though all the snow has melted, it’s still in the low 40s. I’m not sure what the forecast looks like over the next couple of weeks yet, but we may still get more snow.

At least when it was nice for a while, I was able to take Everett out for walks. He’s been coming in to his own this past month. He still needs lots of attention and to be taken outside on leash. I haven’t quite gotten to the point where he listens to me, but I know that will come soon enough. It took Brody a couple years and to be hooked up to my wheelchair. He is a great dog, although needs some training still. He’s going to go for a “vacation” at the trainers’ house for 4 days starting tomorrow.

I’ve been reading audiobooks one after the other to and from appointments. I’ve also been keeping busy by writing more poetry. I pasted some of my poems I recently wrote below. I put writing my book on hold for a while. The format is good, but I need to write more content and that will come in time.

Jenni

The poem below is written for a photo contest based on the one at the beginning of my blog post.

Reflection

Across the river by the golden valley

stands a tree with limbs of certainty,

all gravel roads race to picture it

sunrays arrive to highlight its arches

Shapes and patterns come and go,

embracing the grooves in its bark

leaves stretch showing their veins,

while water droplets reflect light

Curving round its extensive branches

squirrels scurry to their leafy nests

whispers of the dusk draw near

all shadows from the tree disappear

Trapped

I'm like tiny bugs

caught in a spiderweb

Mind trapped in a

body that can’t move

Taking time to heal

within this brokenness

Feelings After Survival

After crash landing in an open minefield

I’m losing the struggle to regain survival,

as shadows cross my path to take me up

waiting for the hardest hours to come

Unable to bear the demons I face,

whispers of the air pass through me

tiny voices share secrets from hidden pasts,

opening canals like passageways afar

Subtle changes behind pain and agony

realizing there’s more behind the masks,

that I put on creating false representations

immersing myself beyond recognition

Now intertwined like the roots of a tree,

sinking further down feeling grounded

connecting myself deep into the earth

anchored keeping me straight and solid